Our Journey so far...

Our craniosynostosis journey so far has been such a learning experience. It is such a hard decision to make between witch surgeon you think is best to operate on your baby. I do have advice for anyone that thinks their baby might have craniosynostosis get it checked out the earlier the better. We didn’t know anything about this so we have been researching and learning along the way. We trust that with prayer and research we are making the best decisions for little MJ. Our journey of doctors first started with a plastic surgeon in Ft. Lauderdale. We originally scheduled the surgery with him for March and sought out other opinions Raimi (my sister) found our doctor in Orlando Dr.Maugans. It was really confusing at first because both doctors had such different ways of performing the surgery the first doctor used screws to hold the scull in place and wanted to wait till MJ was 8months and Dr. Maugans didn’t use any screws and wanted to do the surgery at 6months. In the end we felt that Dr. Maugans approach was the best for MJ . To break down what the doctor will be doing is he will make an incision from ear to ear in a zig zag form this is for the hair so the scar wont be as noticeable. They will cut and remove a strip of bone from his scull where the soft spot has closed up. They will also make slits along the backsides and front sides of his scull to allow the brain to expand. The human body and God are so amazing that the doctor said the scull will shape its self almost instantly around the brain and then grow as it normally does. His soft spot will be closed as normal at 12months. Here are some photos that we have taken to capture our journey so far. Some of the pictures are from the ultrasound on his head, doctors visits and the CT scan he had done. He was such an angel and slept through the whole scan.