MJ's 6 Month post opp check up

MJ recently had his 6 month post opp check up!! I cant believe it!! Its so crazy to think that it was only 6 months ago and he is doing amazing. He is such a curious and active little boy. He is trying his hardest to walk right now which is a little scary, but I'm trying not to be paranoid about him hitting his head on everything. He is so tough he usually falls and bounces right back up. I'm the one that is freaking out lol. 

The doctor said everything is going great with his head! YAY! There are a few bumpy spots and his soft spot is still open but they are going to keep an eye on it. MJ goes back in 3 months for another follow up visit.

Here are some pictures of his visit. :)

2 week Post OP Check-up (2/19)

We had MJ's first check-up since his surgery. He is doing amazing we go back in 6 weeks (4/2). He loved taking a ride in the red wagon. The doctor measured his head and said that his head is right were it should be. The Dr still wants us to be careful with him as much as we can. In other news MJ has FOUND HIS VOICE!! He loves to yell and scream which is so cute. He is trying his hardest to talk back to us. He also is working on crawling we have the army crawl down and are working on pushing our body up. The walker is his thing he has figured out how to maneuver it around the house and trying to run the dogs over. Everyone thank you for all the prayers.

WE ARE GOING HOME!!!

Yay!! We are going home!! MJ is doing so good he hasn't thrown up since last night. Yay. We are so excited. We know this will be a big transition for MJ but we think he will be so comfy in his own room and bed. Please pray that he continues to heal fast. Thank you 

                                  

One Step Forward Three Steps Backward

                                   

MJ is so cute he is laughing and smiling
but he is still in so much pain. Today we were moved out of the ICU (room 5116) I think that was hard on MJ it was stressful. He also had his first sponge bath today. He didn't like it much lol. We need prayer that he will keep food/liquids down. He gets sick a lot. They thought it was the pain meds so they slowed those down. He is now only on Motrin and Tylenol. He is still in pain when taking those. He is still getting sick and he hates taking the meds because they taste so bad. He has learned how to spit them out smart lil guy. His blood cell count was low so he will get that tested again in the am. He just can't get comfortable which is so difficult to deal with because I can't really do anything about that. On top of that he has blown his 4th IV. They didn't put another one back in yet to give him a rest and see if things turn around tomorrow and we go home. Which I don't think will happen. So he is bruised and poked from head to toe. He is also still really swollen so that needs to go down. We are asking for prayer that things keep pushing toward healing. We miss our lil baby.

Mr. Blue eyes is back

He is doing so so good. HE OPENED HIS EYES!!! The swelling is going down and he is getting more active like moving his hands around and reaching for things. His eyes opened at 5:30am this morning we both were there when he opened them. He opened his eyes and we could see him just slowly look around it was the best feeling. He keeps staring at the balloons we tied on his bed. He is the best baby so peaceful and relaxed. Sorry for not posting yesterday it was a busy day. Thank you for all that came to visit us it means so much to us. On Tuesday we had Uncle Eulie Brookins who is my uncle and he also married us and was my youth pastor growing up. He drove from Ocala to see us and pray over MJ thank you. Also on Tuesday we had Jimmy Benner who worked with Nick at ups and he was in our wedding. Thank you Jimmy for coming and just sitting and talking with us durring the surgery it means a lot. On Wednesday we had Rodney and Michelle Gage from Rethink life church they are good friends and neighbors. Thank you both for coming over and talking to us and praying over MJ it really does mean a lot that you were here. On Thursday Great Grandma and Grandpa Merritt came to see us and MJ it was nice to see them and get to talk and hangout for a bit thank you so much for coming over. Also on Thursday Jody and Regis Andrews came to visit. They said that when they didn't see me post on the blog yesterday they knew they needed to come and see us and pray over MJ. Thank you for that you two are so great. 

MJ is improving so much the dr said that we could be moved out of ICU today. Please pray that the swelling continues to go down and that he will be able to keep food/formula down. MJ is getting sick randomly we are thinking it's from the pain meds. Today he just now kept down 4 oz of formula so we are praying it stays like this. 

Thank you for all the goodies that were sent for MJ. We are so grateful for all the prayers for our lil guy. 

MJ Update from Aunt Clo and Aunt Rai

Thursday’s update, it has been a very tough few days for everyone, especially MJ. It didn’t hit us hard until the moment we said goodbye to him just before surgery. He is such an amazing little boy with the best personality. He never cries. He is always smiling, and he has the most adorable little giggle. Coming into the room in the ICU after his surgery was extremely hard. Hearing that perfect little boy in such agony was heartbreaking. We broke down. He has been so tough throughout this whole experience, and we couldn’t be more proud of him. Today he has improved a lot. Yesterday was definitely his worst day. His swelling is finally starting to go down, and we are starting to see our perfect little MJ again. He brought us so much joy today when he started talking and giggling again. He hasn’t cried at all and has been so calm. We are getting so excited to see those beautiful blue eyes again! He just opened his right eye the slightest little bit tonight! Please continue to pray for his swelling and his pain to go completely away! We are hoping to see him open both eyes tomorrow.

P.S. Thank you all for the goodies and balloons. MJ will love seeing them when he opens his eyes!

Much love,

Auntie Raimi & Auntie Chloe

To send MJ cards and goodies

A lot of people have been asking where they can send cards and goodies to MJ. We are at: 

Nemours Children's Hospital ICU

Merritt J Whitt room 3101 

13535 Nemours Parkway
Orlando, FL 32827 

We are still in the ICU the Dr told us today that we might be here the whole stay or most of our stay. If you are wanting to send anything please put attn to Merritt Whitt. They are very good about deliveries here. We will be here for about 4-5 days.  Thank you to all that have sent things for MJ mom and dad appreciate it. He will love seeing gifts when he opens his eyes. You can email us too

Growingupwhitt@gmail.com

Thank you for all the love and prayers. 

Long nights turn into early mornings

  

Yesterday he was groaning and whimpering all day in pain/frustration. Since this morning he has stopped that and is sleeping so peaceful. And he started eating yesterday bottles only but he was hungry. Grandpa got to help feed the lil man. 

He is doing amazing today. Nick and I took turns staying awake with him last night which helped so we could get some sleep. This is the sunrise this morning. Every once in a while he wakes up and rubs his eyes and moans. He doesn't understand why he can't open his eyes. (They are swolen shut) The swelling has gone up a lot just since this morning. The doctor said he thinks it will reach its peak tonight and then slowly go down from there. His eye lids are also turning black and blue this is all normal. We miss seeing his big blue eyes. One thing we are so excited about today is poop he has pooped!!! YAY!! Never thought I would get so excited about poop. Lol. He is so good. Since he can't see us he loves to be held and the doctor said this helps him relax. So everyone has been coming in to take turns to hold the lil cutie.